Your health records contain a type of data called confidential patient information. This data can be used to help with research and planning.
You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.
For further information please visit https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research#additional-information-for-patients-and-the-public
The Secretary of State for Health and Social Care is setting out a new process for commencing data collection, moving away from the previously fixed date of 1st September 2021. The national plan involves patient communication for the revised scheme. We are awaiting public communications and a new go live date, this has not yet been set.
Opting out of NHS Digital collecting your data (Type 1 Opt-out)
If you do not want your identifiable patient data to be shared outside of your GP practice for purposes except for your own care, you can register an opt-out with your GP practice. This is known as a Type 1 Opt-out. If you wish to register a Type 1 Opt-out with your GP practice before data sharing starts with NHS Digital, this should be done by returning this form to your GP practice.
National Data Opt-out (opting out of NHS Digital sharing your data)
This applies to identifiable patient data about your health, which is called confidential patient information. If you don’t want your confidential patient information to be shared by NHS Digital for purposes except your own care – either GP data, or other data we hold, such as hospital data – you can register a National Data Opt-out.